
Today is April 26,2009 and it is 2:09 PM. I want to go ahead and skip to today, if you don't mind. We can talk about what happened on the 23rd of April, later.
The nurse woke me up at 1:45am in the morning. That is because his eyes were opening. Her name is nurse Jill. She woke me up to tell me his eyes had opened, and I guess I shouldn't tell you that I slapped Joe to wake him up, but I did. We held his hands and began talking to him for about an hour until about 2:45 in the morning.
Wait, let's backtrack. I want to talk about what the doctor told me yesterday. She said that the chances of him recovering are very low, actually that he WILL NOT recover at all, but he will be ALIVE. That he will be alive but will be a living vegetable... and "he will never be your baby again and when he opens his eyes he will not see you, wont recognise you, he may never walk again, may never talk again, and he will need a tracheotomy" (told us his gag reflex was not working and the mucus could drown him therefore the tracheotomy will clear it out). She had horrible bedside manor and pretty much told Joe and I that our son Devyn will never recover.
Back to today, back to 2:45 AM. At this point, nurse Jill thinks that he was HEARING us, but that his eyes were only opening because of nerve reaction. The eyes were fluttering more than open. She then placed her hand on his belly and told him that everything was okay. His eyes then popped wide open and he followed her with his eyes. His pupils are no longer at a pin point. Throughout the day I have been holding his hands, talking to him, and singing this song that I have been singing to him since he was born. He is reacting to me. He has opened his eyes several times. It is still a critical time, and we must not stimulate him too much at this point, but I am extremely hopeful.
They are going to fit Devyn's feet today for Hightops to keep the footdrop from occurring. They are going to have to make special shoes because the hightops we bought him did not work. Joey, our 12 year old came to see him today. Joey is he one who saved Devyn's life. He pulled him out of the water. I have to stop and say that most adults wouldn't have reacted that fast. Most people would go into shock. He told us today that he is happy everyone is praising his heroism today, but that he cannot stop thinking about what actually happened. He doesn't ever want to swim again. He feels so guilty. Joe and I have told him over and over how much of a hero he is. In mass this morning, they pulled him up and everyone praised him for how heroic he is. I can only hope and pray that he gains the strength to know how heroic he really is.
Devyn is sleeping now, they no longer have him sedated, but they do have a lot of medication in him. He is still on life support, but is breathing on his own. It is giving him 8 breaths per minute, but as the 8 breaths occur, he is breathing on his own as well. Therefore, he was on life support 100% and now he is just using it as a supplement. His oxygen is also down to 21% and was at 100%. They are keeping it on him just to make sure that his blood is carrying enough oxygen throughout his body and to his brain. They said it is going to take a lot of medicine and a lot of time. Dr Riggs (the nice doctor) came in today (on his day off) and said that he is doing a lot better. He said it very clear and loud, and I believe him..
"The only one who is going to show us what he can do is him"
Today's word is Faith.
Until tonight,
Nikki (& Joe) Costanzo
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ReplyDeleteDevyn,
ReplyDeleteAunt Vicki is sooo sorry that this has happened, but I have faith in you and the Lord. I know the Lord is helping the doctors to do what is right for you and you will pull thru this. You have the greatest cheerleaders, FAMILY. We are all praying and cheering you on and you are such a strong little man that you will amaze all of us. The Lord has you in his hands and is working on you,We will all countinue to be strong for you. I LOVE YOU Titi
Nikki and Joe,
ReplyDeleteI love you both and I know Im a pain calling 50 or more times a day but being here in Georgia I feel useless and Im not even there to comfort anyone. Please know that I to cry everyday and night and pray that Devyn pulls thru this. Always know that I am here and I love you all, I will do whatever I can to help. May the Lord ease your suffering and comfort you.
Devyn its me Titi again and all day you have been heavy on my mind.I know you know mommy and daddy love you and this is torture on them as well as the whole family.We all have faith and are praying that the Lord is going to heal you. See when you get older you will be just like all of us and want instant gratification but we have to learn the Lord answers prays in his time not ours. I think it is his way of teaching us patience and that is something Titi dosen't have.Im also triing to think of it this way he made the world in 7 days and to me you are more precious, so of course it is going to take more time for you to be healed. I know baby it is a hard fight and you are tired but dont give up we are all here waiting to hug you. I also want you to rest you dont have to impress us with a record recovery WE ALL LOVE YOU !!!!!!!!!!!
ReplyDeleteFear not,for I am with you; Be not dismayed, for I am your God. I will strengthen you, Yes, I will help you, I will uphold you with My righteous right hand. Isaiah 41:10
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteI wish there were words that I could say to help ease the pain you all are going through. I am constantly amazed at the strength you show. I can't imagine the pain you are going through and I want you to know that all of us at LBBS are praying constantly for the entire family, for Devyn to recover and to give you the strength to keep going. If there is anything I can do to help please let me know.
ReplyDeleteI'm so sorry you are going through this.
Carrie Wright
Know that you are in our thoughts and prayers for your entire family going through this ordeal. Your mom loves and talks about you all so much that you have a whole group of supporters at the law firm. You all are in our constant thoughts and prayers.
ReplyDeleteThe Moriarty's
Nikki, Joe and Denise,
ReplyDeleteAll of you are in our thoughts and prayers every minute of every day. My son, Danny, said a beautiful prayer tonight that I wanted to share..."Thank you God for this food, thank you God for my family, and thank you God for watching over baby Devyn." They are so innocent and full of love. Hannah said, "mommy, everything will be ok and when Devyn gets out of the hospital, can he come over and play?" Carson said, "mommy, he's a boy and has a cool name, so when he comes over we can play football together." The Graves' family is here if any of you need us at anytime. We love you and God Bless xoxo
Devyn,
ReplyDeleteTiti again I just wanted to share the weirdest thing with you, this morning your cousin Jose (Chuy) woke up turned to me and started hugging me and said dont worry mommy Devny will be O.K. in a couple of days. Now I believe the little ones are closest to God because they still have innocents, and I took a look at another post that said 3 of her children believe everything will also be all right. Devyn the Lord is in control and this may be hurting all of us now but I feel it in my heart that you will be alright. God is with you and he always has been. I dont like it but he is making a point right now. May be he wants to show that mean doctor that said God dosnt answer prayers who he really is, cause our Lord is doctor of all doctors and king of kings. Baby he has your life in a book and we dont know how the story gose but he dose he wrote it. Right now I can say I dont like this part of the story and I dont know where he is going with it but there is parts of my story I dont like either. Just relax let him do what he has to cause no one can change anything. You know he may just want to show all of us his power and by all of us I mean all of your family and friends plus that entire hospital.Always remember I LOVE YOU and me ,Celia ,and Chuy are praying for you plus a ton of others. I know here in Georgia there are 4 churches praying for you and alot of others that all of them have reached out to. The Lord is going to show us something. I love you